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Anne Fadiman’s 1997 book
The Spirit Catches You and You Fall Down is a remarkable analysis of
cross-cultural conflicts in medicine in the case of Hmong patients treated in
Merced, California. The book follows the story of Lia Lee, the child of Hmong
refugees living in Merced in the 1980s, who developed epilepsy at a young age.
The rift that existed between the priorities of her American doctors and those
of her parents tragically compromised Lia’s long term health. Moreover, this
work provides an informed insight into Hmong culture, religion, society and
history and argues compellingly in favour of a better understanding of
different cultural approaches to health and medicine within the American
medical system.
The Hmong are a
mountain-dwelling people that originate from China but expanded south to
highland territories of Laos, Vietnam and Thailand in a mass migration to
escape Chinese persecution in the eighteenth century. The Hmong traditionally
occupy land only at very high elevations and subsist on slash-and-burn
agriculture. They maintain a unique language, culture and religion based on
strict familial and clan structures and a belief in shamanist animism. How
large numbers of this minority group ended up living in a small city in
California is dissected by Fadiman; in the 1970s Hmong tribesmen in Laos were
recruited by the CIA to help fight the communist Pathet Lao that challenged the
US-backed royal government at the height of the Vietnam War. When Laos fell to communist
forces in 1975, many Hmong fled west over the Thai border in fear of reprisals.
The majority of these refugees eventually settled in the United States after
being promised that they would be supported in the case of a communist victory.
Fadiman’s case study is
the Hmong community in Merced. When the book was published, the city’s Hmong
population totalled twelve thousand (of a total population of sixty one
thousand), most of whom lived in a concentrated area of the city.
First-generation refugees struggled with unemployment and dependency on welfare
as a result of their lack of appropriate skills and poor English. Fadiman
explains the fear that much of the Hmong community had of American hospitals, beginning
with myths such as that ‘American doctors eat brains’ penetrating the Thai
refugee camps where thousands of Hmong awaited re-settlement. Furthermore, the
Hmong hold strong taboos against invasive medical procedures, believing that the
body and soul are intrinsically linked. Without being able to effectively
communicate this information to their doctors in Merced, the Hmong population
were merely seen by medical professionals as extremely difficult and
noncompliant patients.
When Fadiman asked the
Lee family what it was that they believed had caused their daughter’s epilepsy,
they told her that Lia’s condition was quag
dab peg, a Hmong name that translates as ‘the spirit catches you and you
fall down’. Lia’s first seizure occurred after her older sister slammed a door
in the house; according to the Lees, Lia’s young soul had been frightened out
of her body and stolen by an evil spirit called a dab. Nobody at the Merced County Medical Centre, to where Lia was
carried in her parents’ arms throughout her childhood, asked the Lees for their
explanation of Lia’s condition. Despite the significant Hmong population of the
city, no interpreters were employed at the clinic; to the doctors who treated
Lia, her parents were a source of frustration due to their refusal to
administer Lia’s anticonvulsant medicines because of their lack of
understanding of Western medical ideas.
The study was borne from
an assignment Fadiman was given for The New Yorker (which was never published).
Fadiman decided to expand her project into what would become her debut book, one
for which, over the course of eight years, she claims to have read everything
relevant that was available on Hmong culture and history at that time, along
with conducting interviews with those on both sides of the Merced conflict in
order to come to understand the roots, nature and potential solution to the
issue.
This is an incredibly
well-researched book that shows appreciation of both sides of the conflict that
troubled Merced’s medical community in the late eighties. Fadiman acts as a
sensitive and respectful broker between the two sides and highlights the damage
that can be done when two cultures collide in a field as critical as medicine.
The reception of her book has been profound. It was awarded the National Book
Critics Circle Award in 1997 and is now used as recommended reading for medical
students studying cultural cohesion in many institutions in the United States.
In a 2012 interview with Rain Taxi, Fadiman talks about how things have changed
since the period in which she was researching the book:
“I was actually just in
Merced a couple of days ago and I saw the new hospital. And their interpreters
are terrific, they have amazing training programmes, they let shamans in to do
healing ceremonies right in the emergency room… Medical students now take
classes in cultural competency, there’s a legal mandate for medical
interpreting, everywhere. So things have really improved, but that doesn’t mean
that there isn’t still room for improvement, there’s still incredible cross-cultural
gulfs in medical care”.
Although the setting of
this book is within the American medical system, I gained from it a lot of
information about Hmong culture and history that may be useful for the purpose
of my project. In 2005, there were 460,000 Hmong in Laos and the number
surpasses one million in Vietnam. They remain a disengaged element of these two
countries’ societies and are often discriminated against. It has been insightful
for me to learn more about the fascinating culture of this secretive group.
Moreover, I found this book incredibly compelling. Fadiman delves down to the
roots of the cultural conflict that gripped the case of Lia Lee and I believe
that even a hardened cynic couldn’t fail to be won around by her engaging explanation.
The book draws upon concerning issues for the medical system in America but its
influence seems to have been wholly positive in affecting change in a very
important area.
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